Sea Life Aquarium & Legoland Discovery Center

Brooklyn, Tanner, Mckay, Levi and I went to the Sealife Aquarium and Legoloand Discovery Center with Hope kids.  I was so glad I had Brooklyn's help, the kids were able to run off on their own while I tagged along with Levi. They were able to participate in a lot more activities together and off on their own as I was with Levi. I am thankful for Brooklyn staying with Mckay and Tanner and enjoying themselves. This will be a memory they will never forget. Thank you Hope Kids for your generousity. 

One on One Date with Mom

I took the kids that wanted to go with me to look at the store of some toys they were interested in. We do no have cable TV, so they do not see any commericals. I took pictures of the items they said they wanted. We talked about the items they wanted and hoped for.  I loved seeing the joy on their faces.  Afterwards, we went to my favorite frozen yogurt shop called Yogurt Kingdom. I enjoyed spending time with them and getting a good idea of what they wanted for Christmas.  When it comes to dessert, my kids tummies are always hungry and they struggle with a good serving size. Thank you Yogurt Kingdom, It was delicious! 💗

Coyotes Game with Hopekids

We attended the Coyotes Game through Hopekids. It was so nice to be in a suite. With Levi having special needs, not understanding his boundaries and not being able to sit still, sitting in a stadium seat is unbearable. We were fortunate enough to be in a suite, plenty of leg room and the choice to be able to move whenever we want is another plus. We came and thought we were prepped and going to have a good time. As the game started, I looked over to check on Levi and this is what he was doing.  I did not know that every time a goal is made, the lights flash and the stadium rings a bell. Flashing lights and loud sounds trigger seizures, so I had to cover his eyes every time. 

My son was overstimulated, cold, and couldn't handle the noise. He was using his brothers' jacket to muffle the noise over his hooded jacket. He was curled up and starting to shut down. When I took him to the bathroom with me, for a movement break, he was sitting in the corner of the bathroom stall in a fetal position, covering his ears and whining. I called Aaron, explained what was happening. I couldn't believe how sad this was to him. I have never been to the coyotes game, so I didn't know what to expect. I wasn't prepared. I felt awful. Aaron went to one of the security guards explaining he needed ear buds to cancel out the noise for our special needs boy. Those foam ear buds did the trick. He was back to himself, eating snacks provided in the suite and watching Jack Frost on the TV. 

Our niece Ashlynn came because Brayden was not feeling good and we needed to fill that ticket spot. We are so lucky she came. She and Brooklyn enjoyed each others company and were fun to watch as they tried to get on the Jumbo-tron.

Thanks Hopekids for giving us this opportunity to go. We appreciate it.

Donated Bikes for Hope Kid and Siblings

Andreas' Closet partnered with The Lost Dutchman Motorcyclist Club who donated hundreds of bikes and toys for the Christmas Angels Trees in Walmart and Hopekids. My kids were able to come, pick out a bike & helmet of their choice,  and walk out without having to pay anything as it was a donation.  Here is the story from 3TV.  If I knew they were going to take pictures and that I would be on Tv, I would have actually got dressed and brushed my hair.  😂

 https://www.azfamily.com/news/lost-dutchman-motorcycle-club-buys-gifts-for-hundreds-of-christmas/article_19eab98c-fc33-11e8-8f68-8b7eb15de474.html

Thank you Grandpa Richins for letting us use your truck so we could transport the bikes home.

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Movie Under the Stars

Through Hopekids we were able to attend a Movie Under the Stars and watch Incredibles 2 outdoors. It was a movie I couldn't bring Levi to, as it has several scenes with flashing lights that will trigger seizures. We were fed cotton candy, popcorn, pizza, fruit snacks, soda & water. Then given glow sticks and light up fidget spinners.

We brought our own chairs and blankets. It was actually really cold and I am so glad I dressed warm. I am glad that my teenagers came and enjoyed the fun movie and food. I am glad that we have the opportunity from Hopekids to enjoy fun events that we can bond and make memories as a family.

Hopekids Pizza & Cake

We attended a Pizza and Cake event with Hopekids. We never really know what to expect at each event, whether it be school, church or family event with Levi. We are so glad we went. It was a great opportunity for us to bond with Levi and Mckay one on one. Since Levi requires so much attention, my other kids have been receiving less attention and they are struggling.  The pizza was delicious and we each made our own.  The kids also decorated their own cupcakes and ate them. 

Since being on their journey with Levi having Epilepsy and Special Needs, how his Epilepsy isn't going away or getting better we have been struggling. For me, I have been so isolated and not having another person to turn to that has already been down this road. Levi wanted to go outside and run around. Aaron was outside and talking with other Moms' about how Levi is getting ready for the VNS (Vagus Nerve Stimulator) surgery and how we have been so worried. This Mom he was talking to, said she had a niece who had it. She said how she saw a difference in her seizures and her life. We have NEVER had anyone to turn to for something like this. This was a glimmer of hope that I was leading in the right direction. This road has been so hard already, but I am starting to see small glimmer of hopes that I am going down the correct path. 

Aaron and I both felt grateful that we were able to meet someone who had a good experience with the VNS surgery. We had hope that Levi would do okay and this surgery would help him, possibly reduce his seizures and pain that he is constantly in.

Mckay had a smile on his face the whole time. I helped him roll out his pizza dough. I helped him with his toppings. He made friends at our table and made more friends when we were outside running around with other Hopekids. We were accepted and loved, no matter our circumstances.  It was a nice time together and we are super grateful for that bonding moment to make memories together.

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Sibling Love

On Veterans day, we went to the zoo. It was packed with so many veterans and kids and it was fun. I had my whole family there and loved it. At the end of our trip, we were walking out but saw these beautiful pelicans. Mckay and Levi's relationship has grown tremendously and still needs improvement, who doesn't need improvement? Levi now hugs and kisses Mckay when he is happy and wants to share that love and happiness with him. It is so cute to watch and know that they are building their relationship.

Mckay and Levi LOVE to sleep in Brooklyns' room. Our rule is only on weekends, this is allowed because they play and don't get as much sleep as they would sleeping in their own beds. This paticular night, Aaron and I were on a date. Brooklyn called us in a panic that Levi had a seizure in his sleep. He woke up, said he had a seizure and whined. Brooklyn prayed to Heavenly Father to ask Levi to stop having a seizure. Levi did stop and then said he wanted to go back to bed.  I am forever grateful that Brooklyn was there to help when I could not. It was a bonding moment in her life and I have seen Brooklyn change for the better. 

I wanted to share the love my children have towards their brother Levi. Levi is very hard at a lot of times, and even when we struggle and have a rough day, at the end of the day, we still love and appreciate Levi. I know I do not give my children enough credit of how much I appreciate them. I try to improve where I am struggling. Brooklyn, my daughter has told me lately how she wants to work at Hopekids Foundation and wants to have a special needs child, preferrably a Down Syndrome Child. I have never heard of any teenager plan to have or want a special needs child for their life. I KNOW that she is learning to love everyone from all backgrounds and all needs in life. I KNOW that she is paying attention and trying to be close to Heavenly Father. She is an example to me. She teaches me new things every day. 

On this particular day, I took Tanner, Mckay and Levi to a Hopekids event at Sea life Aquarium and LegoLand Discovery Center in Tempe. The boys were counting down the days and was so excited. It was also a stressful day. After a long full day at school, Levi is tired and overwhelmed. He usually has between 5-7 seizures at school, not including what he has at home. Overstimulating him causes more seizures, which makes it challenging at these fun events. With Levi's special needs, he doesn't pick up on social cues and boundaries. This is another challenge that we have to maneuver through, daily. The boys are learning to communicate and bond with Levi. It is so nice to see them work together and get along. 

I just wanted to remember the growth of my children bonding and building their relationship with Levi. Not everyday is stressful, we have many good days, but they all take a lot of work. We are forever grateful for having Hopekids in our life. It makes us bond and look forward to really cool events. 

Trip to the Childrens' Museum in Phoenix, Az.

We got accepted into The Hopekids Foundation this year. Hopekids Foundation is for children who have life threatening diagnosis. The Foundation treats our Hopekid and family so well. They invite and strongly suggest for siblings and parents to come to the events they put on, even if Hopekid cannot come. They know how isolating it is for families who have to deal with so much medical appointments, therapies, surgeries and stress. They want us to bond as a family. 

We are so blessed to be apart of this foundation!

Everyone came but Brayden. He had a soccer game to go to. We missed him.

With a large family who is all into extra curricular activities, we don't always get to go to events together all the time, but we try.

This place was really fun. It was a first for us. I was able to let my older children explore on their own. I was able to bring in food and eat in the cafeteria. Note to self: bring an actual lunch and keep in portable cooler, not just snacks. This whole museum was very kid friendly and so fun, even for us adults. 

Thank you Hopekids! We had a blast and made so many positive memories with our family.










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